Programs
What the foundation does
Four programs. Two build the science and its data, one moves money to the researchers who can use it, one holds the community together. Each is scoped so the tools outlast any single disease.
01 The science arm
Research Lab
An AI and computational arm that synthesizes global work, ranks the hypotheses worth testing, and publishes finished outputs open-access.
Read more 02 The data infrastructure
Patient Registry
Family-controlled, IRB-approved records and natural-history data, federated so many small cohorts become one research surface.
Read more 03 Money out
Grants Program
Seed grants to external researchers, sized to unlock the far larger grants that follow. This is venture philanthropy, not charity.
Read more 04 The community
Families
Support, advocacy, and the registry invitation, from one parent to another. This is the community the other three programs are built to serve.